something wonderful is going to happen

Wednesday, July 25, 2012

The story of me, my thyroid...nd the last 10 years

I saw a Facebook question on Thyroid Sexy, Gena Lee Nolin's (of Baywatch fame) Facebook page, "How many have lost jobs, relationships and anything else of extreme importance in your life due to this disease?"

A lot of people wrote about going on disability and being unable to handle their lives. In addition to that, I  have been pondering my youngest son's 10th birthday. Wow, you know, people ask sometimes, where do you see yourself in 10 years. I think I may have actually got there.

In a past life I was a church secretary & worked there almost 7 years. The pastor (a former psych nurse) was there several years and he knew me fairly well. I worked there thru 2 pregnancies, the boys are 17 months apart 2001 & 2002, and I did fine working and pregnancy wise, the entire time. At some point I also had cataract surgery on both eyes which helped my vision like a miracle.

 In 2004 I didn't know I was hypothyroid, or even what that was, but I had a big problem I didn't know about. I was going through a ridiculously contentious divorce at this time as well, so when the kids were at their dad's, I would sleep. I don't really remember a lot about that period in time but I believe my house was a disaster. I would go to work, then pick up my boys and come home and sort of sleep/supervise. At work, my brain was fuzzy and I made stupid mistakes while printing the church bulletins every week and putting the calendar together, and scheduling things. I knew I was screwing up, and I had no idea what was wrong. I thought it had to be ADHD. I would spend time trying to re-re-organize my calendars, or keep track of what I did, I would make lists of the tiny tasks I performed, which I felt like would show how much work I was doing, except it didn't help. It didn't matter.

The pastor saved up every mistake I made in a big list and then he and the church council president sat me down presented me with a few options; resign or take a pay cut/fewer hours. I was freaking out, in a very subtle, sleepy, sad sort of way. I had no idea what was going on. I remember listening to them talking to me about my performance, as if I was in a fishbowl and their voices were all wavy and my vision was blurry and I just wanted to put my head down on the table during the entire meeting. Insane! I was forced to resign, they weren't really offering me the options, and so I went home and slept and slept and slept.

Then I pulled myself together a little bit, but it wasn't easy. A friend found odd jobs for me to do for her business, and after spending a good deal of time with me, she suggested I see a doctor. I got a simple blood test. My TSH was 56 on a scale of 0.4-4.0, the nurse told me if hers was that bad she'd be on the floor asleep. I was working my butt off helping my friend, and sleeping, or laying on the deck watching my kids play without me. I was started on a very low dose of levoxyl. A while later I got a job, and the task was to help open a retail store. This job required ladder climbing, heavy lifting, concentration. I don't know how I did it. I would go in to work at 6 AM still exhausted from closing the night before.

Over the course of 3 years I went slowly from about 25 mcg of levoxyl to 112mcg, where a former Dr. held me for a long time. Over the course of 3 years I worked my way up from temporary set up employee, to full-time, to hourly department manager, to assistant manager and a salary! That was my first "real job" - I got the promotion the same week the company announced they were filing for bankruptcy and started closing stores. I closed down the store, locked the door for the last day on Dec. 23 in 2008, and sat around wondering what to do next.

I went back to school and two years later got my teachers license. Until an art teacher job opens up, I'm a substitute teacher. I have student loans, and no insurance, since I don't have a "real job". I pay cash (on a sliding scale) at the district health clinic for all my tests, etc. The PA I see these days has worked me up from 112 to 137 mcg of Synthroid and last test was TSH 1.05, which I am pretty happy about.

I have put on 40 lbs since this all started (I was hyper-thyroid for a brief amount of time and lost a lot of post-pregnancy weight, luckily, or I would really be huge.) I eat very carefully and burn a lot of calories every day, but actual weight loss eludes me.

Recently my PA agreed to let me start taking Armour thyroid, which is a natural product derived from dessicated pig thyroid...so I'm switching over slowly to Armour. I'm really super-focusing on my eating habits, so I have lost about 4 lbs. but I'm not really that excited since I have a tendency to gain and lose the same 8 lbs. in a matter of days. For the summer I have a very-part-time job, and just applied for another one, so next month I'll probably have 3 jobs including substituting, plus I'm signing up for graduate classes because I'm working on a special education endorsement.

Oh, and I'll be 40 this year. My youngest son turns 10 soon. My biggest dream is to have a real job, and to stop renting and own a real home.

 

1 comment:

Garret said...

Wow, the time line put it into perspective. I "met" you as you were working your final days at the linen shop. I never knew you had just gotten a promotion.